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Post by account_disabled on Feb 14, 2024 12:15:20 GMT 2
The that they can feel it just for a moment. No one knows chronic pain unless they experience it. Chronic pain is daily. Chronic pain is neverceasing. Chronic pain does not take time off or go on vacations. It is forever present. What I really wish they knew was that I didnt want to miss the th birthday the tossing of the bouquet or when everyone went out to the club and danced until midnight. I wanted to be there. I really did. The fatigue was so bad and I needed to rest. No I wasnt tired I was fatigued. It is a lack of energy like when you have the flu and must conserve your energy and use it sparingly. Its not feeling sleepy. Sleeping doesnt really help and often when I sleep I wake Cuba Email List feeling even more fatigued than before I fell asleep. Because I expect that my fatigue will appear at some point I must be smart about how I use my energy every day. From the moment I open my eyes in the morning to the time I lay my head onto my pillow at night to sleep that I do and how much energy I will be using. I must schedule rest breaks. Naps dont really help me but I must take time away from any activities or things that involve a lot of mental energy and rest my brain as well as my body. I wish people knew what I used to be like and what I used to be able to do before the ankylosing spondylitis got worse. When I was younger I was involved in so many more activities and had so much more energy. A person without ankylosing spondylitis will naturally age and the body and mind will also naturally become older. As a person with ankylosing spondylitis I not only age with time.
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