Post by account_disabled on Feb 14, 2024 12:15:41 GMT 2
The but my body and mind go through changes as the disease progresses with time. I wish people knew about my brain fog from my medications and from the fatigue and mental exhaustion. I wish I could explain it to them so that they could understand what it is like to tell a story and then I simply cant find the word that I want to say a word that I use every day.
It is so frustrating and embarrassing. It makes me feel stupid and I am an intelligent person. around people that I know well and that are my friends and family. What ankylosing spondylitis does to the body and what I have experienced with my own body over time is something that I just dont like to Hong Kong Email List about with anyone. I wish my friends and family that think that they know me so well actually were able to know what it feels like to be in my body to wear my skin and my bones joints and organs as their own. I cant imagine what they would think if they suddenly felt intense neck pain low back pain rib pain or the inability to move fluidly like they were used to doing. If they only knew of the exhaustion that occurs inside of this body and how tasks take twice as long to times as long.
It is so hard to explain to others what its like to go through a flare. Its almost like being in a race and running well keeping your pace steady and then tripping over a rock. When you hit the rock with your toe you stumble onto a turtle and then you slip on that turtle and fall onto a rattlesnake. The snake bites you and it turns out that as you are going to go take care of the snake.
It is so frustrating and embarrassing. It makes me feel stupid and I am an intelligent person. around people that I know well and that are my friends and family. What ankylosing spondylitis does to the body and what I have experienced with my own body over time is something that I just dont like to Hong Kong Email List about with anyone. I wish my friends and family that think that they know me so well actually were able to know what it feels like to be in my body to wear my skin and my bones joints and organs as their own. I cant imagine what they would think if they suddenly felt intense neck pain low back pain rib pain or the inability to move fluidly like they were used to doing. If they only knew of the exhaustion that occurs inside of this body and how tasks take twice as long to times as long.
It is so hard to explain to others what its like to go through a flare. Its almost like being in a race and running well keeping your pace steady and then tripping over a rock. When you hit the rock with your toe you stumble onto a turtle and then you slip on that turtle and fall onto a rattlesnake. The snake bites you and it turns out that as you are going to go take care of the snake.